Jenny Edwards, a specialist epilepsy nurse with Swansea Bay University Health Board, has received a national award from Epilepsy Action for going above and beyond in supporting patients and challenging stigma. The 51-year-old was praised for her compassion, expertise, and tireless advocacy — especially during the development of the charity’s new ‘Seizing Change’ report, which highlights serious gaps in epilepsy services across Wales.
“The Heart of Our Community”
Jenny was nominated by Jan Paterson, Epilepsy Action’s Wales Manager, who described her as “the heart of our community.”
“Jenny is one of those rare people who makes an extraordinary difference,” said Jan. “She listens without judgement, challenges stigma, and reminds patients they are so much more than a diagnosis. Families trust her. Colleagues admire her. And countless people are living better, braver lives because of her.”
Jenny regularly uses Epilepsy Action’s resources to support patients and families, and is known for her gentle but fierce advocacy — helping people navigate complex care systems and feel seen in moments of vulnerability.
Wales Falling Behind on Epilepsy Care
The award comes as Epilepsy Action Cymru’s ‘Seizing Change’ report reveals that every health board in Wales is failing to meet NICE guidelines for follow-up care after a first seizure. Patients should be seen within two weeks — but in some areas, including Hywel Dda, waits stretch up to 36 weeks, the longest on record.
The report also highlights a shortage of epilepsy specialist nurses, with just 17 full-time ESNs serving more than 36,000 people living with epilepsy in Wales. That’s over 2,000 patients per nurse, far above recommended caseloads.
A Moment to Celebrate — and a Call to Action
Rebekah Smith, Chief Executive of Epilepsy Action, said Jenny’s award was a chance to spotlight the care that is possible — even as the system struggles.
“Jenny is a true inspiration. She shows the difference compassionate care can make. We will continue to campaign for better epilepsy treatment across Wales, until excellence is the standard.”
Epilepsy Action is urging the Welsh Government to invest in specialist staff and improve access to timely treatment. The charity also offers support through its freephone helpline (0808 800 5050), counselling services, and local groups.
